Dossier
disease registries
Coverage of disease registries in the Nexus archive.
- New effort aims to speed the development of rare-disease treatments
The Chan Zuckerberg Biohub is launching a new funding initiative to accelerate rare-disease treatments by supporting patient-led organizations and scientists. The effort aims to build research networks, collect data, establish registries, and foster collaboration between patients, physicians, and researchers to overcome challenges in developing therapies for overlooked conditions.