Dossier
sickle cell
Coverage of sickle cell in the Nexus archive.
- Community support helps Miami teen prepare for upcoming life-saving bone marrow transplant
Miami teen Gigi Felix, battling sickle cell disease, received community support to secure rare blood donations needed for a life-saving bone marrow transplant. OneBlood confirmed 50 units of compatible blood were collected, with Felix’s brother serving as the marrow match. Post-transplant, she may require additional transfusions as her blood type changes to match her brother’s.
- Opinion: $2 million gene therapy cures require a financing model
Gene therapies can cure diseases like sickle cell with a single treatment but cost over $2 million per patient. The article argues these high costs are justified by long-term savings from avoiding hospitalizations, complications, and lost productivity.